Parenting, Puberty, and the Autism Spectrum

My precious, precocious, oldest daughter has a diagnosis of PDD-NOS, Pervasive Developmental Disorder Not Otherwise Specified. "The pervasive developmental disorders, or autism spectrum disorders, range from a severe form, called autistic disorder, to a milder form, Asperger syndrome. If a child has symptoms of either of these disorders, but does not meet the specific criteria for either, the diagnosis is called pervasive developmental disorder not otherwise specified (PDD-NOS)." Which, diagnostically, trumps her ADHD diagnosis although the two conditions can co-exist.

Just to look at her you'd not expect much different from your typical preteen. Her IQ is a little above average and she makes good grades in school. She's friendly and polite. She is healthy. She has very few "glaring" symptoms. Rather she has a range of symptoms that, depending how stressed she is, present as behavior that is quirky, odd, immature, or uncooperative. I do not mind my child being quirky. That runs in the family. The challenge for me is to keep in mind that she isn't "just" odd, immature, or uncooperative--important to remember especially when she's driving me nuts. She percieves the world a little differently. Traditional guidance/discipline (such as the universal "parental glare of disapproval") often doesn't have the desired result.
At age 11 1/2, she is very tall and clearly entering puberty with all of the usual hormonal repercussions. I had allowed myself to put the PDD-NOS on the back burner. With a high conflict divorce there was always some fire to put out in therapy. Plus there has been a social skills ebb and flow; she will be noticeably behind peers, then the gap will almost close to within normal range (as it did for most of 5th grade). A few months ago my daughter expressed her fears of managing socially in middle school--concerns echoed by her therapist--and PDD-NOS was back on the radar. Social issues are a hallmark of this disorder, as if middle school wasn't already social torture. And I realized we had been cruising along on my understanding of autism in young children. Adolescence is a different racket. And I have some homework to do.


One of the BEST information sites for Autism Spectrum disorders that I have found is from the National Institute of Mental Health. Click here to view.